Two of Me: Living With Porphyria
A story of human strength, perseverance, and survival, chronicling the lives of 7 people around the world living with AHP.
Hear from the acute hepatic porphyria (AHP) community
Voices of AHP is a platform filled with real stories from real people about AHP. These stories may help empower those who have been diagnosed and encourage those who may be undiagnosed to recognize and understand the symptoms of AHP.
9:20
Nicole’s long road to diagnosis
Nicole talks about her long journey to an acute hepatic porphyria (AHP) diagnosis, alongside Dr. Angelika Erwin, a porphyria expert, who provides an overview of the disease, including symptoms and ways to test for AHP.
4:56
Megan’s unpredictable reality
Megan, along with her mother and husband, discusses her struggles with the unpredictable nature of acute hepatic porphyria (AHP).
3:37
Nathan’s long road with hereditary coproporphyria (HCP)
Nathan discusses how HCP impacted his life since the age of 7 years old.
3:11
Ania’s family inheritance
Ania discusses how acute intermittent porphyria (AIP) has affected 3 generations of women in her family with severe attacks and agonizing pain.
2:20
Glauciene’s life beyond acute intermittent porphyria (AIP)
Glauciene shares how she won’t let AIP stop her from accomplishing her dreams.
2:20
Regina overcomes her variegate porphyria (VP)
Regina’s battle with VP kept her from running. Now, she’s back to running life on her terms.