Person diagnosed with acute hepatic porphyria (AHP)
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Two of Me: Living With Porphyria

A story of human strength, perseverance, and survival, chronicling the lives of 7 people around the world living with AHP.

Hear from the acute hepatic porphyria (AHP) community

Voices of AHP is a platform filled with real stories from real people about AHP. These stories may help empower those who have been diagnosed and encourage those who may be undiagnosed to recognize and understand the symptoms of AHP.

Video of Behind the Mystery of Acute Hepatic Porphyria (AHP)
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Nicole’s long road to diagnosis

Nicole talks about her long journey to an acute hepatic porphyria (AHP) diagnosis, alongside Dr. Angelika Erwin, a porphyria expert, who provides an overview of the disease, including symptoms and ways to test for AHP.

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Video of Megan's story with acute hepatic porphyria (AHP)
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Megan’s unpredictable reality

Megan, along with her mother and husband, discusses her struggles with the unpredictable nature of acute hepatic porphyria (AHP).

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Video of Nathan's story with hereditary coproporphyria (HCP)
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Nathan’s long road with hereditary coproporphyria (HCP)

Nathan discusses how HCP impacted his life since the age of 7 years old.

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Video of Ania's story with acute hepatic porphyria (AHP)
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Ania’s family inheritance

Ania discusses how acute intermittent porphyria (AIP) has affected 3 generations of women in her family with severe attacks and agonizing pain.

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Video of Glauciene’s story with acute intermittent porphyria (AIP)
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Glauciene’s life beyond acute intermittent porphyria (AIP)

Glauciene shares how she won’t let AIP stop her from accomplishing her dreams.

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Video of Regina's story with variegate porphyria (VP)
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Regina overcomes her variegate porphyria (VP)

Regina’s battle with VP kept her from running. Now, she’s back to running life on her terms.

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PELs are professionals with backgrounds in nursing—educating people and their families about AHP.

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