You just made the next step a little easier

Download your sheet, then print, or save to your phone. Keep it handy. In an emergency, it may help your care team get the info they need.

Let’s help you feel in control of your next emergency room (ER) visit—in 3 easy steps

Create your own personalized ER info sheet to help doctors treat you faster and more effectively during an acute hepatic porphyria (AHP) attack.

Step 1: Fill out your information

Enter your medications and emergency contacts

Step 2: Generate your sheet

Get a downloadable PDF you can save or print

Step 3: Share it when it matters

Hand it to ER staff or show it on your phone during an attack

This sheet doesn’t just carry your information. If you’re in too much pain to understand your symptoms, it helps fill in the gaps. It helps doctors understand. It helps you feel seen. And it turns a rare disease into shared knowledge.

For the most accurate and up-to-date treatment plan, please fill this out with your healthcare provider:

Patient Name

Date of Birth

Primary AHP Physician Name

Physician's Contact Info

Current Medications List your regular AHP treatments and any supporting medications (such as pain or antinausea medications)

Acute Attack Treatment Plan List your physician-recommended steps for treating an attack. Include any drugs, environment needs, or monitoring instructions.

Emergency Contact Provide the name and phone number of someone to contact in an emergency.

AHP Emergency Information Sheet

Let’s help you feel in control of your next emergency room (ER) visit—in 3 easy steps

Step 1: Fill out your information

Step 2: Generate your sheet

Step 3: Share it when it matters

Connect with a Patient Education Liaison (PEL)

Patient - Branded Modal Block