Get Support Materials

Explore helpful downloads that provide information about acute hepatic porphyria (AHP), genetic testing, and more.

Two of Me: Living With Porphyria

A story of human strength, perseverance, and survival, chronicling the lives of 7 people around the world living with AHP.

DOCTOR DISCUSSION GUIDE

Doctor discussion guide

After downloading, complete the Doctor Discussion Guide and bring it with you to your next doctor visit. It may help start the conversation about getting tested for AHP.

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Brochure with information about acute hepatic porphyria (AHP)

Acute hepatic porphyria brochure

This reader-friendly brochure takes you step by step through what AHP is, its signs and symptoms, testing, and suggestions for living with AHP.

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Alnylam Act Brochure

Alnylam Act® brochure

This helpful brochure offers a review of AHP, genetic testing and counseling, and the Alnylam Act® program.

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Connect with a Patient Education Liaison (PEL)

PELs are professionals with backgrounds in nursing—educating people and their families about AHP.

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Patient - Branded Modal Block