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HEAR FROM THE acute hepatic porphyria (AHP) COMMUNITY

Voices of AHP is a platform filled with real stories from real people about AHP. These stories may help empower those who have been diagnosed, and encourage those who may be undiagnosed to recognize and understand the symptoms of AHP.

Video of Megan's story with acute hepatic porphyria (AHP)
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MEGAN'S UNPREDICTABLE REALITY

Megan, along with her mother and husband, discuss her struggles with the unpredictable nature of AHP.

See Megan’s story
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Video of Nathan's story with hereditary coproporphyria
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Nathan's long road with Hereditary Coproporphyria (HCP)

Nathan discusses how hereditary coproporphyria (HCP) impacted his life since the age of 7 years old.

See Nathan's story
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Video of Ania's story with acute intermittent porphyria
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ANIA’S FAMILY INHERITANCE

Ania discusses how acute intermittent porphyria (AIP) has affected 3 generations of women in her family with severe attacks and agonizing pain.

See Ania’s story
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Video of Colin discussing how his porphyria hid behind other diagnoses
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REVEALING COLIN'S TRUE CONDITION

Colin shares how porphyria hid behind other diagnoses.

See Colin's story
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Video of patients describing the symptoms of AHP
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THE CRIPPLING PAIN OF AHP

Patients describe the debilitating symptoms they feel between and during attacks.

See their experiences
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