–Ashley, living with AHP



Stay informed with resources about AHP

There is a range of resources designed to help people understand acute hepatic porphyria (AHP) and handle the challenges of living with the disease. A great starting point is downloading a printable Doctor Discussion Guide. Once the Guide is downloaded, you can complete each section and then bring it to an upcoming doctor appointment. This can help start conversations about whether you should be tested for AHP.

Brochure with information about acute hepatic porphyria


This reader-friendly brochure takes you step by step through what AHP is, its signs and symptoms, diagnosis, and how to live with AHP.

Download PDF
Person diagnosed with acute hepatic porphyria
Alnylam Act®

Alnylam-sponsored third-party genetic testing and counseling programs for acute hepatic porphyria offered at no charge

The Alnylam Act® program was created to provide access to genetic testing and counseling to patients as a way to help people make more informed decisions about their health.

  • While Alnylam provides financial support for this program, tests and services are performed by independent third parties
  • Healthcare professionals must confirm that patients meet certain criteria to use the program
  • Alnylam receives de-identified patient data from this program, but at no time does Alnylam receive patient-identifiable information. Alnylam uses healthcare professional contact information for research and commercial purposes
  • Genetic testing is available in the US and Canada. Genetic counseling is only available in the US
  • Healthcare professionals or patients who use this program have no obligation to recommend, purchase, order, prescribe, promote, administer, use, or support any Alnylam product
  • No payers, including government payers, are billed for this program

Your doctor must sign up for the program and confirm that you meet certain criteria in order for you to receive genetic testing at no charge.

This helpful brochure offers a review of AHP, genetic testing and counseling, and the Alnylam Act® program.

Genetic testing and counseling

Download the Alnylam Act® Brochure

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