Two of Me: Living With Porphyria
A story of human strength, perseverance, and survival, chronicling the lives of 7 people around the world living with AHP.
A story of human strength, perseverance, and survival, chronicling the lives of 7 people around the world living with acute hepatic porphyria (AHP), a debilitating, rare genetic disease characterized by excruciating attacks and, for some, chronic symptoms. The film is directed by Emmy-nominated filmmaker Cynthia Lowen and sponsored by Alnylam Pharmaceuticals.
Up next:
2:20
Glauciene’s life beyond acute intermittent porphyria (AIP)
Glauciene shares how she won’t let AIP stop her from accomplishing her dreams.
3:11
Ania’s family inheritance
Ania discusses how acute intermittent porphyria (AIP) has affected 3 generations of women in her family with severe attacks and agonizing pain.
AHP can take up to 15 years to diagnose—tell 15 people today to help change that.