TWO OF ME: LIVING WITH PORPHYRIA
A story of human strength, perseverance and survival, chronicling the lives of seven people around the world living with AHP.
A story of human strength, perseverance and survival, chronicling the lives of seven people around the world living with acute hepatic porphyria (AHP), a debilitating, rare genetic disease characterized by excruciating attacks and, for some, chronic symptoms. The film is directed by Emmy-nominated filmmaker Cynthia Lowen and sponsored by Alnylam Pharmaceuticals.
People living with AHP can often wait up to 15 years to receive an accurate diagnosis. Help close this gap by telling 15 people about the film to raise awareness of AHP.
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2:20
GLAUCIENE’S LIFE BEYOND ACUTE INTERMITTENT PORPHYRIA (AIP)
Glauciene shares how she won’t let acute intermittent porphyria (AIP) stop her from accomplishing her dreams.
3:11
ANIA’S FAMILY INHERITANCE
Ania discusses how acute intermittent porphyria (AIP) has affected 3 generations of women in her family with severe attacks and agonizing pain.