Upcoming Programs & Events
Whether you are living with or wondering if you may have acute hepatic porphyria (AHP), it’s important to stay proactive and informed. Below you can find an array of upcoming programs and events.
Click below to register for an upcoming event.
Whether you are living with or wondering if you may have acute hepatic porphyria (AHP), it’s important to stay proactive and informed. Below you can find an array of upcoming programs and events.
Click below to register for an upcoming event.
Upcoming Events
UNCOVERING ACUTE HEPATIC PORPHYRIA (AHP) TOGETHER
1:00 PM EST
Sullivan's Steakhouse
700 West Dekalb Pike
King of Prussia, PA 19406
Host/PEL: Lara Hervias, MSN, RN
Featured Speaker: Megan, Alnylam Patient Ambassador
UNCOVERING ACUTE HEPATIC PORPHYRIA (AHP) TOGETHER
7:00 PM EST
Virtual Program Log-in from your computer or tablet, (internet access needed)
Host/PEL: Barrie Devaney, BSN, RN, CRNI
Featured Speaker: Elizabeth Bowhay-Carnes, MD, UT Health San Antonio
Additional Featured Speaker: Heather , Alnylam Patient Ambassador